Learning the facts of life – Part 3

“There’s a time you got to go and show you’re growin’ now you know about the facts of life”

– The Facts of Life theme song

 

It took even me a long time to learn all of these things about Down syndrome. I am still learning to this day. I am also open to any and all questions. I would rather someone ask – no matter what it is – and start a dialogue about any of these facts than to have you sit there and wonder. Please feel free to reach out at any time!

 

1144178276_10157911815999358_4541880731009286144_n

Brighton works every day and we cheer so much and so loud that we even scare him a little sometimes.

 

1244101626_10157914431679358_8901818482627182592_n

When people hear Brighton has a twin sister the first question is usually “And is she….” And I say “No, she doesn’t have Down syndrome. She’s typically developing” or something similar. I think so far most or all people have stopped before asking if she’s “normal” because, really, all our kids are “normal”. Each one of them is unique and that uniqueness is their own personal normal. So asking if Goldie is normal would make it sound like Brighton is abnormal, which he very much is not. He’s amazing. All our kids are amazing.

 

B (6)44748876_10157936786999358_2820142437849104384_n

 

1344563155_10157920089474358_1819936325176918016_n

This year, I will be reading books to all of the classes at our kids’ school! Brighton started attending two days a week back in January, and they have been so welcoming and supportive in raising awareness. We’ll also be rocking our socks!

 

1444506927_10157923259969358_4956623792680992768_n

And we get to spend every day with one of these amazing people! We are so lucky!

 

B (7)44541320_10157925544519358_3054410874958643200_n

Smile!!

 

1544770232_10157928447599358_7177586969541607424_n

It may be called Down syndrome but there’s nothing down about it! (Also, depending on where you are in the world, some countries do still use the apostrophe and call it “Down’s syndrome”.)

 

1645243692_10157951334744358_2627605805658013696_n

Brighton did not have any heart defects. We started echo-cardiograms while the twins were still in utero and are still seen every 4 months to keep tabs on him. Because of his pulmonary hypertension, the cardiologist likes to keep an eye on his heart and how it’s working and he’s been doing great.

 

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s